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Monthly News Roundup: November 2016

Welcome to the Medrio Monthly News Roundup, in which we brief you on a sample of events and developments taking place around the industry. This recurring update functions on popular demand – the stories in this post come from the articles in our social media feeds that garnered the most attention from our readers and followers. Your likes, clicks, and retweets decide which stories make it beyond your newsfeed and onto our blog.

This week, we bring you a new clinical trial of a rare disease, highlights from a forum on big data in healthcare, and a new app matching potential patients to clinical trials. Take a look, and tune in for the next roundup in a month!

1. Clinical research on a rare, but severe, disease

Though Wolfram syndrome a rare neurological affliction, its effects are devastating. That’s why the Snow Foundation plans to kick off 2017 with the first ever worldwide clinical trial for a Wolfram medication. If successful, it could ultimately bring a new treatment option to patients – mostly children and young adults – suffering from a disease with a low survival rate and severe symptoms such as loss of eyesight and hearing. Researchers believe it could also lead to the development of treatments for Alzheimer’s, Parkinson’s, and other neurological diseases.

2. Summing up insights into big data and healthcare

Late in October, HIMSS and Healthcare IT News hosted the Big Data and Healthcare Analytics Forum in Boston. Later, Healthcare IT News ran an article offering a recap of some of the top insights shared at the forum. Speakers covered a wide range of topics including, but not limited to, machine learning, crowdsourcing, data governance, and how they all play a role in healthcare data.

3. Patient, meet trial

One of the fundamental causes of patient recruitment struggles is that would-be patients simply aren’t aware of how to access and enroll in clinical trials. To address this, Genospace has developed Trial Match, an app that matches patients to trials. Hosted on Apple’s operating system, Trial Match uses EHRs, lab results, and other sources of patient data to ensure that only patients with a high likelihood of eligibility are matched with a given trial. The users of the app are doctors and other healthcare providers, who serve as liaisons between patients and recruiters.


That’s all for this roundup. We’ll have three more stories for you next month. In the meantime, check out this blog every week for new insights into EDC and clinical research.

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